MS awareness week

One disease. No two alike. Which is why it’s one of the hardest diseases to diagnose. So hard in fact, that many … thousands of many … go undiagnosed. All the while their symptoms worsen and they suffer.

MS — Multiple Sclerosis — is a crippling disease. And the longer it goes undiagnosed, the more permanent the damage.

Early detection, diagnosis, and prevention are so important with MS. Which is why awareness is crucial.

{photo credit}

There are people all over this world who haven’t an idea of what MS stands for, let alone the many facets of the disease. Admittedly, until it touched my life I was pretty clueless myself.

Multiple sclerosis is an autoimmune disease of the central nervous system that has no cure and is highly treatable. In MS, inflammation in the brain and spinal cord causes the loss of myelin, the insulation around nerves. Symptoms include loss of vision, numbness, tingling, excessive fatigue and weakness. They can range from mild to severe.

In layman’s terms … myelin is the coating around our nerves. Think of it like the rubber that covers electrical wire. If that rubber {or myelin} wears thin or is exposed, there’s a short in the wire {or nerve}. MS attacks the myelin covering our nerves, leaving the nerve exposed. And because we have nerves all over our body, where the MS attacks is where we might feel most our symptoms. Since there’s no rhyme or reason to the attack, symptoms — along with severity — vary from patient to patient.

In a healthy person, myelin repairs itself. But in a patient with MS, regeneration doesn’t occur. Though current research is being done to change that fact.

I was diagnosed with MS in 2009 and for me personally, symptoms vary daily. I’m currently battling extreme fatigue. Please believe me when I say extreme. It’s only by the grace of God I make it through most days. I have other struggles, but it won’t necessarily bless anyone by going into all of them. And truly … compared to others battling the disease, I’m doing pretty good!

Even though new advances and research are being done every day, it’s so important to continue to advocate and raise awareness. If you have a moment, maybe you could share this post with someone … it could make all the difference in the life of another.

The National MS Society is another great resource to gather more information on this crazy, yucky disease.

Do you or someone you know struggle with a chronic disease?

292 Comments

  1. dawn March 13, 2013 at 8:33 am

    praying for healing, still. because He can. xo

    Reply
  2. Cat Moore March 13, 2013 at 10:30 am

    Girl, you are so brave and strong! I admire you and your attitude! I sometimes forget you stuggle with MS because I see you through our computer screens and phones and I don’t know you in person (yet :)) But, this is something I am going to be praying about for you. I am praying healing in Jesus’ name. Love you! So many are touched by you. Going to share this!

    Reply
  3. Marina March 13, 2013 at 10:35 am

    Thanks for sharing! I have known people with MS, but should re familiarize myself with the symptoms, and pray more!!

    Reply
  4. Susan Lesperance March 13, 2013 at 12:54 pm

    Tracie, continuing to send prayers your way…and thanks for all that you do to educate, inspire and motivate us to be better people. God bless you dear one.

    Reply
  5. Debra Bacon March 13, 2013 at 12:59 pm

    Thank you for this post. For sharing your personal struggle and explaining it in such a way, anyone can understand. I lost a long-time friend from complications associated with MS.

    Off to share this important post.

    Prayers and blessings ~Debra

    Reply
  6. Terry March 13, 2013 at 2:07 pm

    I sometimes forget that you do have it because with everything you deal with you do it with such grace and strength. I know you silently suffer and wish I could somehow help. I remember a post along time ago when you pointed out how most people would never think that you are dealing with MS because you never complain…but thanks for reminding us that although it is not visible…it is so there. Thinking about you my friend!

    Reply
  7. Nadine March 13, 2013 at 2:09 pm

    Thank you, Tracie. As a child of a parent with MS, this post is beneficial for so many reasons. My dad was diagnosed in 1988 at 34 years old; however he had been diagnosed in 1980 but the doctors didn’t feel it necessary to tell him he had the disease. The hardest part of the disease from a childs perspective is watching your parent lose so much of themselves. My dad’s has effected his brain more than his body, so to the real world, he looks normal. And all things considered is one of the most healthy people I know. But he’s not healthy on the inside and it’s tough to remember sometimes. He’s also one of the most prayful men I’ve ever known. He’s really my hero for all he’s had to go through, and my mom for learning to live with the man who is not the man he was when they said “I DO”.

    For me, celebrating my 33rd birthday this year, I struggle with fear of getting it (as we know it’s not completely certain whether or not it can be passed on through the generations). It’s taught me to not take my health or body for granted, even though there isn’t much you can do to prevent it.

    I pray for you and your family. The hardest this disease hits is the families connected to it.

    Reply
  8. Nancy March 21, 2013 at 11:39 am

    Prays for all who suffer from this disease. My Mother has MS and now suffers from failed back syndrome (had herniated disc-surgery didn’t help) and now must live with her painful MS and the pain from herniated disc. My Mom has the painful type of MS and the worst part–not having pain meds that stop the nerve pain which is debilitating!

    This disease is devastating on a family because it is chronic… I’ve seen my Parents go from being upper middle class to poverty. My Dad was a business owner–couldn’t keep up with the insurance rates going up (they wanted to kick them off the plan and did) and now my mom has state insurance and lives in an apartment. Their lives have been ruined from MS and my Dad struggles with depression! I wish only the strong got MS, but it effects anybody…

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